Presentation by "Debra: The 'Butterfly Skin' Charity" on a vibrant screen. A person stands by a table in a conference room, conveying an informative tone.

Butterfly Skin, Strong Voices: Raising EB Awareness with Debra Ireland

On a recent episode of Disability Matters, host John Comiskey spoke with Alejandra Livschitz, Head of Strategic Communications at Debra Ireland. The conversation offered deep insights into epidermolysis bullosa (EB)—often referred to as the “butterfly skin” condition—and the vital work Debra Ireland does to support individuals and families living with it. What is EB? EB, […]

Butterfly Skin, Strong Voices: Raising EB Awareness with Debra Ireland Read More »