“I Have a Right to Live”: Jessi Abbey’s Fight for Skyclarys and a Future with Friedreich’s Ataxia
For Jessi Abbey, the fight for access to Skyclarys was never simply about a drug. It was about time: time to watch her five-year-old daughter Remi grow up, time to continue working and living independently, and time to experience the ordinary moments in life that many people take for granted. Jessi, who works at BCIL,


