independent living

Supporting Every Step: Understanding Motor Neurone Disease with the IMNDA

On a recent episode of Disability Matters, host John Comiskey spoke with Naomi Fitzgibbon, Director of Nursing Services at the Irish Motor Neurone Disease Association (IMNDA). The conversation offered a compassionate look at the realities of living with motor neurone disease (MND), the challenges of diagnosis, and the vital support available to patients and families […]

Supporting Every Step: Understanding Motor Neurone Disease with the IMNDA Read More »

A woman in a black dress, adorned with a floral accessory and necklace, smiles while performing on stage. A double bass is seen in the background.

Precarity Squared: Emily Conway on the DADA Campaign for Disabled Artists

Interviews Disability Matters / BCIL

On a recent episode of Disability Matters, host John Comiskey spoke with Emily Conway, singer, artist, and founder of the DADA Campaign (Disabled Artists, Disabled Academics). Their conversation revealed the realities of building a career in the arts while living with disability, the systemic inequities disabled artists face, and the growing movement to demand recognition,

Precarity Squared: Emily Conway on the DADA Campaign for Disabled Artists Read More »

Breaking Barriers, Building Acceptance: Adam Harris on Autism in Ireland

Interviews Disability Matters / BCIL

On a recent episode of Disability Matters, host John Comiskey spoke with Adam Harris, founder and CEO of As I Am, Ireland’s national autism charity. The discussion explored what autism is, the challenges faced by autistic people and their families, and the vital role As I Am plays in advocacy, support, and community change. What

Breaking Barriers, Building Acceptance: Adam Harris on Autism in Ireland Read More »

Presentation by "Debra: The 'Butterfly Skin' Charity" on a vibrant screen. A person stands by a table in a conference room, conveying an informative tone.

Butterfly Skin, Strong Voices: Raising EB Awareness with Debra Ireland

Interviews Disability Matters / BCIL

On a recent episode of Disability Matters, host John Comiskey spoke with Alejandra Livschitz, Head of Strategic Communications at Debra Ireland. The conversation offered deep insights into epidermolysis bullosa (EB)—often referred to as the “butterfly skin” condition—and the vital work Debra Ireland does to support individuals and families living with it. What is EB? EB,

Butterfly Skin, Strong Voices: Raising EB Awareness with Debra Ireland Read More »

A diverse group of people in a stadium stand, smiling and holding large blue numbers "75." They're celebrating an event in a joyful atmosphere.

Changing Lives, Building Independence: Ciara Heffernan on the Work of Rehab Ireland

Interviews Disability Matters / BCIL

“Unfortunately, anyone can find themselves living with a disability — it can happen in an instant.” That’s how Ciara Heffernan from Rehab Ireland begins her conversation with host John Comiskey on Disability Matters. It’s a reminder that the organisation’s work is not just for “someone else” — it could be for you, a friend, or

Changing Lives, Building Independence: Ciara Heffernan on the Work of Rehab Ireland Read More »

Two men stand smiling near a "92.5 Phoenix FM" banner with the slogan "One Community, Many Voices." A microphone and a planner are visible nearby.

Beyond the Headache: Pascal Derrien Explains the Complex Reality of Migraine

Interviews Disability Matters / BCIL

“People often think migraine is just a bad headache — it’s far more complex than that.”That’s how Pascal Derrien, CEO of the Migraine Association of Ireland, opens his conversation with host John Comiskey on Disability Matters. His words set the tone for a discussion that moves beyond myths, breaking down the reality of living with

Beyond the Headache: Pascal Derrien Explains the Complex Reality of Migraine Read More »

Two men seated and smiling in a radio studio. A "92.5 Phoenix FM" banner and "Disability Matters" sign are visible, conveying a friendly, inclusive setting.

Disability Support in Action: Kingsriver and the Innovation Bridge – Gerard McGrath’s Story

Interviews Disability Matters / BCIL

“The moment I walked in, I felt welcome.”That’s how Gerard McGrath describes his first day at Kingsriver Community in Co. Kilkenny — this first impression was the beginning of a journey toward confidence, purpose, and community. Gerard recently joined Disability Matters to share his story—one that reflects the real impact of person-centred support in action.

Disability Support in Action: Kingsriver and the Innovation Bridge – Gerard McGrath’s Story Read More »

Revolutionizing Disability Support: Enable Ireland’s Virtual Services

Interviews Disability Matters / BCIL

We recently had the chance to sit down with some of the amazing people behind Enable Ireland’s virtual service—a growing and powerful initiative that’s changing the way we think about disability supports in Ireland. In this episode of Disability Matters John Comiskey speaks with Jason, Valerie, and Pádraig, three passionate people who’ve helped build something

Revolutionizing Disability Support: Enable Ireland’s Virtual Services Read More »

“You Have a Choice Every Day”: The Story of Máirín Ní Bheacháin

Interviews Disability Matters / BCIL

When Máirín Ní Bheacháin stepped onto the TEDx stage for the first time, she wasn’t simply delivering a talk. She was defying every fear, limitation, and obstacle that once stood in her way. As a personal stylist, entrepreneur, and volunteer, her message —rooted in lived experience — is about confidence, resilience, and choosing to live

“You Have a Choice Every Day”: The Story of Máirín Ní Bheacháin Read More »

“No Excuses, Just Possibilities”: Rob O’Byrne Brings Inclusive Fitness to Life

Interviews Disability Matters / BCIL

In a recent episode of Disability Matters, Patrick O’Donnell spoke with Rob O’Byrne —fitness coach, entrepreneur, and advocate for inclusive physical education. Rob’s journey, marked by resilience and innovation, began with a life-changing accident at 17 and has since evolved into a mission to redefine accessibility in sport and wellbeing. At 17, while on holiday,

“No Excuses, Just Possibilities”: Rob O’Byrne Brings Inclusive Fitness to Life Read More »

Barbara Brennan - Programme Coordinator for See Change, the National Stigma Reduction Partnership, where she has been promoting mental health awareness and stigma reduction for a decade. 28.06.23.-1
Stephen Hodnett - Occupational Therapist with the organisation and developing telehealth services for DCD with the University of Limerick. Dyspraxia Ireland. 28.06.23.-2
Roseanne Joyce - has been doing some work experience with the Home Help section of BCIL. 22.06.2023.-1
Karen Smith of BCIL - discussing the ongoing issue of Changing Places. 22.06.2023.-2
Michael White - discussing his late wife Kay O’Shea who was a longstanding Disability Rights activist and the issue of access at Spike Island in Cork. 22.06.2023.-3
Shelly Gaynor - Peer Mentor of ILMI. Shelly directs a Personal Assistants Service through her own company shellyonwheels. Giving disabled people complete control over their own lives. 04.07.2023.-1
Wunmi Excel Ategie- social care practitioner and a humanitarian actor. She has over 20 years experience of working with the deprived and under-represented groups. 04.07.2023.-2
Laura - OPhilbin- Interim Research & Policy Manager at The Alzheimer Society of Ireland. Management and activities of the Research & Policy Team.Laura holds a PhD from the Dementia Services Development Centre at Bangor University in Wales in addition to a BA in Psychology from University College Dublin. 28. 07. 2023. https://www.carealliance.ie info@carealliance.ie Ph. 01 874 7776
Helen Baxter - Play volunteer in Children In Hospital Ireland At the heart of Children in Hospital Ireland’s work is its play service which is now available to children in hospitals throughout Ireland. Charity managing a voluntary service in Irish hospitals. By providing engaging and supportive play in wards, playrooms, emergency departments and outpatient departments, Children in Hospital Ireland play volunteers nurture curiosity and creativity and provide distraction from the stress of being in hospital. Sandyford, Dublin 18. 28. 07. 23. Ph: 01 290 3510 https://childreninhospital.ie info@childreninhospital.ie
Amy Kelly - Head of Communications and Fundraising at Crohn's & Colitis Ireland CCI Director, who lives with Crohn’s disease. Crohn's and Colitis Ireland is a support organisation in Ireland for people who are living with, or impacted by, Crohn's disease or ulcerative colitis (collectively known as Inflammatory Bowel Disease or IBD). Some of the negative impacts of living with IBD may include social exclusion, unemployment/under-employment,etc. 28. 07. 23. Ph.: +353 1 531 2983 https://crohnscolitis.ie info@crohnscolitis.ie
Clodagh- Hogan-The Jack and Jill Children’s Foundation was set up in 1997 by Jonathan Irwin and his wife Mary Ann O’Brien (founder Lily O’Brien’s chocolates), in memory of their son Jack who suffered a brain trauma shortly after birth that left him developmentally delayed and shattered the dreams and hopes of his parents. 04. 08. 2023.
Fleachta Phelan - DFI organisation working with people with disabilities to implement the UN CRPD and ensure their equal participation in society. 10. 08. 2023.
Joyce Ogunyemi is an International Development and Education expert and a British qualified teacher (PGCE Maths Specialist). Before her teaching career, Joyce devoted over 20 years in the international development sector to environmental conservation and sustainable development causes, justice sector reform and policy development, human rights advocacy, fundraising/donor relation and implementation of intervention programmes. As an education consultant, Joyce worked in Rwanda where she assessed the quality of an educational programme and delivery method to ensure the quality of provision. She was also a researcher with the National Universities Commission Abuja where she assessed the quality of tools used in the accreditation of programmes in Nigerian universities. 06.09.2023
Make Way Day 2023 - Interview with Geraldine Rooney and Karen Smith. Seeks to bring the disabled and the wider community together to consider how people with disabilities use the various public spaces we share. It is a chance for the disabled community to come together and find solutions to improve the lives of those with different abilities. The campaign is led by the Disability Federation of Ireland (DFI), and it is a collaboration between the different government and voluntary sectors. #MakeWayDay23 on Friday 22nd September, will help bring about this change, by creating awareness of the access issues faced by the people, as they go about their daily business.
Paula Harris - Crosscare services Manager, Community Food Services I have worked in three different Crosscare services – Portland Row, Holles Row and Dun Laoghaire since 1992. I have seen all sides of poverty in my time with Crosscare. The one thing that doesn’t change is how we treat people – with love, respect and dignity. That is what has kept me with Crosscare – how we treat the clients – how we treat each other. Tel: 01 836 0011 Email: info@crosscare.ie https://crosscare.ie/
Emilie Conway - jazz singer, composer and lyricist. DADA: Disabled Artists & Disabled Academics Campaign for Human & Cultural Rights Emilie is a founding artist of a new movement, the DADA Campaign for Human and Cultural Rights. Emilie was prompted to become more vocal on the rights of people with disabilities from her own experiences, heightened by the relative absence of disabled peoples’ voice throughout the pandemic, compounded yet again, as the society opens up. DADA stands for Disabled Artists & Disabled Academics attesting to the coterie Emilie’s “speaking up” attracted to her over the past year. DADA’s mission is to achieve greater equity for disabled people by pointing out and challenging barriers to full participate and contribution to the arts, culture, economy and whole of society. DADA aims to achieve this through creation of art that builds public awareness, engaging with media, and building transformative relationships with Arts and Cultural Institutions and Government, see media, for more equitable policy and practice in line with UNCRPD. If you would like to get involved please email dadacampaign@gmail.com and follow us on Twitter: @DADACampaign https://www.emilieconway.ie
Peter Kearns Cross Border Social Inclusion Project Manager and Co-ordinator for Independent Living Movement Ireland. (ILMI)
Sarah Keogh - Coeliac Disease, Gluten intolerance Sarah Keogh, a dietician who works actively with The Coealic Society of Ireland, explained that the disease remains undetected amongst thousands of Irish people Coeliac Disease (pronounced see-lee-yak) is an autoimmune disease which causes some adults and children to react adversely to gluten in food. Gluten is the protein in wheat, barley and rye. These grains are common ingredients in foods such as bread, cakes, pasta, beer, pizza and other manufactured foods.
Acquired Brain Injury Ireland - Brain Injury Support & ServicesOur expert teams support individuals and families recovering from the impacts of brain injury by offering services and tools that help them live their fullest lives with confidence. 25.09.2024
Alannah Brady - BCIL employee Crohn's & Colitis 18.10.2024
Bathroom Adaptions Bathroom Adaptations is one of Irelands leading providers of high quality domestic and commercial bathroom conversions. Our staff have over 20 years experience in the area of products and services for the eldery and the disabled so an expert, professional service is guaranteed to all clients.18.10.2024
Carmel Doyle RNID, RCN, RNT, BSc, PgDip CHSE, MSc Nursing is an Assistant Professor and Head of Intellectual Disability Nursing at the School of Nursing and Midwifery, Trinity College, Dublin. 18.10.2024
Christina Donnelly, National Co Ordinator, Chronic Pain Ireland Chronic pain is a complex, multi-faceted disease that prevents people from enjoying a full life A lack of understanding within the healthcare system and society only compounds the physical and emotional distress caused by persistent pain. Many people live with pain for years before they get a proper diagnosis. 25.09.2024
Eilish Burke - Ageing and Intellectual Disability Dr. Eilish Burke RGN RNID BNS MSc PhD is the Ussher Assistant Professor in Ageing and Intellectual Disability and the Associate Director of the Centre for Excellence in Ageing and Intellectual Disability. 18.09.2024
Fiona Armitage, a person with Chronic Pain. 03.10.2024
Ciaran Garrett of Hail Housing, Ireland’s specialist mental health housing association - HAIL Providing the key to independent living since 1985 through high quality social housing and mental health tenancy sustainment services. Our housing management team ensures that the highest standards of accommodation are maintained and that our tenants are provided with secure tenancies in communities in where they want to live. 11.09.2024
Karen Charnley, As Chief Executive Officer, Karen provides strategic leadership for the All Ireland Institute of Hospice and Palliative Care (AIIHPC) including brokering relationships between the Institute’s 28 members (universities, hospices, health and social care organisations and charities), funders and key stakeholders. Karen leads the Institute Team and oversees the delivery of the Institute’s Business Plan across education, research, policy and practice, service user and career engagement and raising awareness. Karen also represents the Institute on key regional and national fora and contributes to palliative care policy and strategic discussions. 12.09.2024
Kathy Forde of Tick Talk Ireland, Tick Talk Ireland is composed of a small group of passionate volunteers wanting to provide accurate information about the prevention, diagnosis and treatment of Lyme Disease. 17.10.2024
Kate and Mary of Move For Parkinsons, Move4Parkinson’s was established in November 2011 by Margaret Mullarney who was diagnosed with Parkinson’s in 2004. Since her diagnosis, Margaret has discovered that there is a huge range of activities that People with Parkinson’s (PWP’s) can undertake to improve their quality of life. 05.09.2024
Rachel and Orla of Narcolepsy Ireland, Narcolepsy Ireland is a voluntary organisation, which was set up to help and support people in Ireland with narcolepsy (and Irish People with narcolepsy all over the world). It provides a source of information and support to their loved ones, carers, employers and friends. 19.09.2024
Owen McGirr - Switchify app Hi, I’m Owen McGirr, and I developed Switchify, an open-source Android app designed to make smartphones and tablets more accessible for individuals with physical disabilities. As someone who has personally experienced the challenges of navigating technology with limited mobility, I created Switchify to address a need I knew was urgent: providing people with a simple, effective way to control their devices using adaptive switches 15.10.2024
Pascal Derrien - Migraine Association of Ireland Pascal is currently the CEO of Migraine Ireland and he is also a Board Member for IPPOSI and the Chairman of the Practitioner Council at SERI (Social Enterprise Republic Ireland 22.09.2024
Orla Veale, CEO Irish Thoracic Society The Irish Thoracic Society is the national organisation representing respiratory healthcare professionals throughout Ireland. The society is dedicated to championing excellence in the prevention, diagnosis, and clinical care of respiratory disease through its work in advocacy, education and research. 12.09.2024
Pioneering women The Voices of Fingal Women Pioneers program aims to establish a supportive platform for women, empowering them to articulate their leadership, deepen community connections, and impact local elections. 07.09.2024
Aiden Long - Communications & Strategic Engagement Manager (Asthma Society of Ireland) Asthma is a chronic disease but it can be controlled. Tragically, one person each weeks dies from asthma and 90% of these deaths are preventable. Through the delivery of health information, skills and support, we believe our programmes can raise awareness of asthma and improve people’s ability to control their symptoms and therefore reduce the likelihood of asthma attack. Our programmes are offered in a wide range of settings across all of Ireland. 18.10.2024
Lynn Boylan - European Parliament - GUE/NGL, Lynn Boylan is an Irish Sinn Féin politician who has been a Member of the European Parliament from Ireland for the Dublin constituency since July 2024. She was previously an MEP for Dublin from 2014 to 2019. From 2020 to 2024, she served as a Senator for the Agricultural Panel. Her priorities are: Fighting for Climate Justice and making sure this government doesn’t leave anyone behind in the transition away from fossil fuels. Campaigning for justice for the 48 victims who lost their lives in the Stardust Tragedy and their families. Fair tax reform to help hard pressed working families while generating sufficient revenue to invest in jobs, health, education, childcare and community services. 30.10.2024
John Mc Carry, Blue Stack Fondation - The Bluestack Foundation was established to provide direct supports to people themselves and direct supports to their families and carers. We raise most of our funds through the local community and a range of fundraising activities. We are heavily reliant on the generous donations of the local community and indeed the public who kindly take it upon themselves to fundraise on our behalf. 30.10.2024
Sarah Keogh - Coeliac Society of Ireland, We are a national organisation representing all coeliacs and gluten intolerant people in Ireland. We are also a European organisation which, as part of the Association of European Coeliac Societies, works towards European-wide legislation and research. We are everywhere!
Emma Clarke Conway & Eddie, Polio Survivors Ireland. We are the only organisation in Ireland providing practical support (and a listening ear) to people who had polio as babies or young children. Approximately 5,000 polio survivors in Ireland live with Post Polio Syndrome or Late Effects of Polio and have increasing needs as they age. With over 1,000 members, Polio Survivors Ireland works to ensure that survivors get proper support, services and information necessary to maintain their independence and dignity. (14.11.2024)
Reinhard Schäler, CEO and Founder - An Saol. Life and Living with a severe Acquired Brain Injury (sABI) To survive a severe Acquired Brain Injury is one of the most hard-hitting, life-changing events for the survivor, their families, and their friends. What makes it worse is that in Ireland families are left with no hope, basically having to fend for themselves. Shockingly, it is still accepted practice that survivors are sent to nursing homes – after a short assessment period in either an acute hospital or the country’s only National Rehabilitation Hospital (NRH) – to be ‘medicated, managed, and maintained’ for the rest of their lives. (21.11.2024)
Lynn Buckle, Award-winning Irish🦻Author (Chime - national charity, Deaf and Hard of Hearing people). Chime is Ireland’s national charity for Deaf and Hard of Hearing people. Through advice, services and our community we support those who are Deaf or Hard of Hearing, while also championing for equal rights and advocating for full inclusion in every part of society. (27/11/2024)
Shane & Karen - Taxi Transport Issues. Irish Wheelchair Association reacts to Transport issues across the capital.
Catrina Scullion - Classical singer (Soprano), Musician. Catrina is a highly accomplished and sought after Soprano soloist with an extensive and versatile performance background.
Amy Kelly, Head of Communications and Fundraising at Crohn's & Colitis Ireland, who lives with Crohn’s disease. Crohn's and Colitis Ireland is a support organization in Ireland for people who are living with, or impacted by, Crohn's disease or ulcerative colitis (collectively known as Inflammatory Bowel Disease or IBD). (09.12.2024)
Sean Brennan, is the founder of the charity Bikers Ride Out For Prems. The story of Bikers Ride Out For Prems started with a solo event by Sean Brennan called “Rev Up For Prems”, where he rode round Ireland visiting Neonatal Units and receiving sponsorship and accommodation from the very kind hearted people in Ireland. (16.12.2024)
Emma Wallace and Louise Patterson - Cystic Fibrosis Ireland - Cystic fibrosis is a multi-organ disease that primarily affects the lungs and digestive system.
James Casey - Christian Blind Mission (CBM) Ireland - CBM Ireland is a Christian international development organisation , committed to improving the quality of life of persons with disabilities in the poorest countries of the world. Our vision is of an inclusive world where all people with disabilities enjoy their human rights and achieve their full potential 13.02.25
Amy Lavelle - Project Manager (Re-emerge project) - Care Alliance Ireland (CAI) We work with organisations to provide better information and supports to Family Carers. We provide them with opportunities to collaborate on initiatives including National Carers Week, a multi-agency and multi-disciplinary Family Carer Research Group, and joint policy submissions 11.02.25
Clann Mór - Intellectual disabilities - Clann Mór endeavours to empower the people who avail of our service by supporting the principal of person centeredness. This allows each person to exercise choice in decision making and to have greater control over their own lives, in accordance with their ability. Clann Mór’s objective is to enable people with intellectual disabilities to live meaningful lives of their choosing in their local communities, and to deliver this objective in consultation with them, their families and the local community working with all the stakeholders. 07.02.25
BEAM Srevices - Supporting Adults with Additional Needs - We have been providing training and services to adults with special needs since 2000. BEAM stands for ‘Barrow Valley Enterprises for Adult Members with Special Needs’ and is an integral part of the Bagenalstown and South Carlow area. We are generously fostered and supported by the community in which we operate, and in return, we make a significant contribution in a host of fun and practical ways. 14.02.05
Pearse Corcoran - Heart Children Ireland (HCI) - Heart Children is the national organisation providing support to people born with Congenital Heart Disease (CHD) and their families. We work to help people with CHD of all ages to stay well, live confidently and enjoy life to its fullest. 12.02.25
Virge Connery - Clinical Director/ CEO - Chartered Behavioural Psychologist (PSI) -Virge is the founder of Behaviour Detectives and a frontline behaviour support services provider for individuals with Autism and challenging behaviours. She has been practising in the area of behaviours of concern and Positive Behaviour Supports over 10 years. Virge gradually moved to self-employment and has operated as a Behaviour Consultant with the HSE Disability Services since 2013. 04.02.25
Deirdre Lennon, Fundraising & Corporate Affairs Manager at Cheshire Ireland - At Cheshire Ireland we provide a vast range of services to people with both physical, sensory and neurological conditions, who often have very complex and high support needs. 21/03/2025
Ken Kilbride, ADHD Ireland - We are national level non-profit organisation dedicated to providing up-to-date information, resources and community building opportunities to individuals with ADHD, as well as parents of children with ADHD and the professionals who serve the ADHD community. 21/03/2025
Fiona Challoner Malone, Corporate Partnerships and Major Donor Manager - Down Syndrome Centre - Ireland’s only charity dedicated to clinical, educational and wellbeing services for children with Down syndrome from birth to 18 - and their families! 13/03/2025
Róisín Lonergan, The Creative Director (Five Lamps Arts Festival) - In 2007, while a teacher at Marino College of Further Education, Róisín approached Dublin City Council’s Arts Officers about the need for an arts festival in the Five Lamps area. The reaction was positive and Róisín was told that the Council would support it if she would initiate it. That she did and the festival is currently in its 9th year. 10/03/2025
IPPOSI - Laura Margia - “We are the collective voice of patients, science and industry in Ireland” 06/03/2025
Tara Regan, Communications and Advocacy Manager at Arthritis Ireland. Arthritis Ireland is the national patient organisation and health research charity representing one million people living with the condition in Ireland. (28.03.2025)
Vicky McGrath, CEO Rare Diseases Ireland. Rare Diseases Ireland (RDI) is the national alliance for rare disease patient organisations in Ireland, working across all rare diseases to improve the lives of the estimated 300,000 people living with rare diseases in Ireland. (31.03.2025)
Kim Tully, CEO Engaging Dementia. Engaging Dementia is a registered charity that provides training and resources for those who care for people with dementia in residential care, day centres, hospitals or the family home. Our training services are primarily for the staff of nursing homes, day centres and hospitals. Our resources are suitable for both formal and informal carers. We are involved in a range of community-based initiatives focused on supporting communication and engagement for people with dementia. (01.04.2025)
Joe Condon, Early Onset Parkinson's Disease. Early Onset Parkinson’s Disease (EOPD.ie) is a completely voluntary registered not for profit, providing peer Parkinson’s support all over Ireland. We are a small but committed team with big plans for the future of the organisation. (09.04.2025)
Gerry Murray, BCIL's Volunteer - Mental Health Café - Blanchardstown, Dublin. (10.04.2025)
Antoinette Tierney, Manager at Blanchardstown Centre for Independent Living (BCIL) (12.04.2025)
Aisling Shanley, Fundraising and Communications Manager at Childvision. Located in Drumcondra, Dublin, ChildVision is Ireland’s only dedicated centre for children with sight loss , some of whom also have profound sensory impairments and additional disabilities. We are a national resource for families and professionals needing expert help in the area of visual impairment or visual impairment and/or additional disabilities. We also offer a satellite service from our centre in Cork. (15.04.2025)
Carol Brill, Founder & Chair at Usher Syndrome Ireland. Usher syndrome (USH) is a rare genetic condition that primarily affects hearing and vision. Its main symptoms include sensorineural hearing loss and retinitis pigmentosa (RP), a progressive eye disease that causes gradual vision loss, leading to night blindness and tunnel vision. Some individuals with Usher syndrome may also experience balance difficulties due to vestibular issues. It is the leading genetic cause of combined hearing and vision loss, also known as dual-sensory loss or deaf, blindness, affecting an estimated 400,000 people worldwide. In Ireland, it is believed that between 260 and 350 people are living with this condition. (01.05.2025)
Geraldine Rooney, Freda Brady, Claire Power - BCIL services. “Independent Living is about having the freedom to have the same choices that everyone else has in housing, transportation, education and employment. Independent living is about choosing what aspects of social, economic and political life people want to participate in Independent living is about having control over your life, to have a family, to get a job, to participate socially and to realise your goals and dreams.“ For many disabled people, Independent Living can best be achieved by the employment of Personal Assistants. Independent Living is not just about daily living. It is about self-determination, control, choice and the real freedom to make decisions Independent. Blanchardstown CIL is part of a nationwide group of disability organisations of Ireland. (07.05.2025)
Amy Kelly, Inflammatory Bowel Disease (IBD), World IBD Day. World IBD Day World IBD Day takes place on 19 May each year and unites people worldwide in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases. (12.05.2025)
Claire Power, in charge of the reception desk at BCIL & Frida who is the Home Support Coordinator at BCIL, speaking about a friendly team that helps Disabled Persons make their lives easier every day. 07.05.2025
Sharon Lane from Dyspraxia DCD Ireland to talk about what dyspraxia (also known as Developmental Coordination Disorder or DCD) really is, how it affects both children and adults, and what services are available for those living with the condition. 14.05.2025
Ken Rogan, Head of Communications, Cancer Trials Ireland. 15.05.2025
Stephen Murray, Engagement Officer and Mentor at Aspire Ireland provided invaluable insight into autism, neurodiversity, and the work Aspire Ireland does to support autistic individuals in Ireland. 21.05.2025
Dearbhail Mullan, Treasurer at Williams Syndrome. From early diagnosis to education, inclusion, and the joy of peer connection, this conversation highlights the unique strengths and challenges of those with this rare neurodevelopmental condition. 19.05.2025
Patrick McGeoghegan, Advocacy and Communications Manager at Epilepsy Ireland. 22.05.2025
Eamon McPartlin, Functional Neurological Disorder (FND) Ireland. 27.05.2025
Vanessa Martin (HRPPD), Brendan Heade (Actor) - Walk Ireland - is an inclusive society where communities value and treat all people as equal citizens. 27.05.2025
John Michael, Irish Guide Dogs. Our dogs enable people who are vision impaired achieve greater independence and mobility Guide Dogs act not only as a mobility aid but also as a constant support providing both safety and social benefits. (27.05.2025)
Mary Tynan, Before the Covid pandemic, between 10,000 and 20,000 people in Ireland were believed to suffer from Myalgic Encephalomyelitis (ME), now sometimes diagnosed under the name Chronic Fatigue Syndrome (CFS). It is thought that the figures have now grown dramatically. Many unfortunately have not been diagnosed. (29.05.2025)
Gerry Maguire from Hydrocephalus Ireland - his personal journey with Spina Bifida and why independent living, mental health support, and changing mindsets must be national priorities. 26.06.2025.
Rob O’Byrne - fitness coach, entrepreneur, and advocate for inclusive physical education for disability people. 26.06.2025
Dr. Una Molloy from the Irish Association for Palliative Care. 10.07.2025.
Melania, Mark, Ava & Abby from Stewart Care. 10.07.2025.
Máirín-Ní-Bheacháin creator of MoStyle and Tedx speaker. 10/07.2025.
Dr. Susan Marron and Dr. Frances Murphy, DCU (Dublin City University's Institute of Education). 17.07.2025
Sorcha Barlow, MS Support & Education Nurse at MS Ireland. 24.07.2025
Jason, Valerie, Padraig from Enable Ireland (provides services to children and adults with disabilities) 31.07.2025
Conor Dillon, Youth Ambassador and Joy Winston, Development Officer from Gaisce. 31.07.2025
Gerard John McGrath from Kingsriver Community, Person-centered Care with a Difference. 07.08.2025
Pascal Derrien – CEO Migraine Association Of Ireland. 14.08.2025
William O’Brien, CEO See My Skills. 14.08.2025
Anna-Marie Burke from Ashma Society of Ireland. 21.08.2025
Ciara Heffernan from Rehab Ireland. 21.08.2025
Shane O’Brien from Parkinson Ireland. 21.08.2025
Alejandra Livschitz, Head of Strategic Communications at Debra Ireland
Ken Kilbride: How ADHD Ireland Empowers Children, Adults, and Families. 22.08.2025
Adam Harris, is the Founder and CEO of AsIAm, Ireland's Autism Charity. 26.08.2025
Johnny Sheehan, The Wheel’s Member Engagement Manager. I joined The Wheel in 2016 and am responsible to ensure all our members are supported to work more effectively. 28.08.2025
Michael Breen, National Learning Network (Rehab Group). National Learning Network (NLN) is a leading Irish provider of personalised education, training, and development for people who face challenges in finding employment, including those with disabilities, mental health issues, or other support needs. 28.08.2025
Going Gluten-Free: Sarah Keogh on Living with Coeliac Disease. 12.09.2025
Fionnula MacLiam, Obsessive Compulsive Disorder (OCD). OCD Ireland is a national organisation which provides support and information to people suffering with Obsessive Compulsive Disorder (OCD), Body Dysmorphic Disorder (BDD) and TTM (trich/hair pulling). 17.09.2025
Naomi Fitzgibbon, Irish Motor Neuron's Disease Association (IMNDA). 18.09.2025
Ellen Jennings, BodyWhys Ireland. Communications Officer at Bodywhys, with a background in communications and human nutrition. (10.09.2025)
Carmel Doyle RNID, RCN, RNT, BSc, PgDip CHSE, MSc Nursing is an Assistant Professor and Head of Intellectual Disability Nursing at the School of Nursing and Midwifery, Trinity College, Dublin. Her research and teaching reflects her interest in the areas of intellectual disabilities and children nursing. (26.09.2025)
Claire McGouran, WeAct, Culture Night / Oíche Chultúir is brought to you by the Arts Council; it is a national moment, celebrating culture, creativity and the arts and seeks to actively promote the belief that this rich and varied culture is alive, treasured and nurtured in people’s lives, today and every day. (15.09.2025)
Ruth Lunnon, Snr Information & Support Worker at Headway Ireland. Headway Ireland provides services in the community to people affected by a brain injury, including stroke. We are an internationally accredited organisation and a registered charity. (19.09.2025)
Pierce Richardson, Make Way Day. Diversity and Education Officer, Disability Federation of Ireland. (23.09.2025)
Prof. Marcus Kennedy, World Lung Day. Breathing Beyond the Hype: Professor Marcus Kennedy on Vaping, Lung Health, and Protecting the Next Generation. (25.09.2025)
Victoria Spillane, World Stoma Day. Breaking Barriers: Real Talk on Living with a Stoma. (30.09.2025)
Aisling Kennedy, Muscular Dystrophy Ireland (MDI) (01.10.2025)
Christina Hamilton, Diabetes Ireland (03.10.2025)
Caroline Kane Montague, Brain Tumor Awareness Week (09.10.2025)
BCIL Day - Interviews (17.10.2025)
Care Alliance, Zoe Hughes (21.10.2025)
Dr. Eilish Burke, (Trinity College Dublin) Adults With Intellectual Disability (22.10.2025)
Sorcha Nallen, Anne Sullivan Centre Ireland (24.10.2025)
Shane Rothwell, Lack Of Hoists In Hotels. (04.11.2025)
Kate Gray, Move4Parkinsons. At Move 4 Parkinson's we strongly believe in patient empowerment and in the ability of People With Parkinson's (PWP's) to improve their quality of life once they have been given access to information, tools and techniques which have been proven to work. (05.11.2025)
Dawn, Mental Health. “Don’t Give Up, Don’t Give In”: Dawn Shares Her Journey Through Trauma, Mental Health Struggles, and Hope. (11.11.2025)
Reinhard Schäler, Saol Foundation. “Rehabilitation Needs a Revolution”: Reinhard Schäler on Building Hope for People with Severe Acquired Brain Injury. (14.11.2025)
Sinead Crawley, Sara Prodoni, Acquired Brain Injury Ireland. Brain injury doesn’t just affect the person who acquires it. It impacts the lives of their family, friends and loved ones too, as they come to terms with its physical, psychological and emotional effects. We’re here to help you understand brain injury. (17.11.2025)
Sinéad Hayes, Fingal Community Officer. In this episode, we talk about the importance of inclusion, independent living, and empowering people with disabilities through local initiatives and lived experience. (20.11.2025)
Angela Clayton Lea, Cancer Trials Ireland. (20.11.2025)
Dominic Cogan, Mindfulness Teacher (Self Compassion). On this episode of Disability Matters, Patrick O’Donnell is joined by mindfulness teacher Dominic Cogan. Dominic shares his own journey through anxiety and depression, and explains why self-compassion matters — not just relaxation or “positive thinking,” but real kindness toward ourselves. He unpacks what mindfulness really is, how self-compassion differs from pity or sugar-coated optimism, and offers a short guided practice listeners can try at home. (24.11.2025)
Emma Clarke Conway, Mick Keegan, Polio Survivors Ireland. In this episode of Disability Matters, John Comiskey speaks with Emma Clarke Conway, Operations Manager at Polio Survivors Ireland, and Mick Keegan, who contracted polio as a baby and now lives with the late effects of polio and post-polio syndrome.(25.11.2025)
Strengthening Independence Through Vision Support in Ireland: David Redmond on Life & Technology. 21/01/2026
What does real peer support look like — Geraldine Rooney, Development Officer BCIL 11/02/2026
Victoria Spillane, Crohns & Colitis Ireland. Crohn's and Colitis Ireland is a support organization in Ireland for people who are living with, or impacted by, Crohn's disease or ulcerative colitis (collectively known as Inflammatory Bowel Disease or IBD). 09.03.2026
Shelly Gaynor, Peer Mentoring Worker at ILMI. Shelly recently joined the ILMI team as Peer Mentor for the Greater Dublin Area. (10.03.2026)
Sorcha Barlow, MS Support and Education Nurse. Multiple Sclerosis (MS) is a condition affecting the central nervous system (CNS), which consists of the brain and the spinal cord. (16.03.2026)
Vanessa Martin, Human Rights and Participation Practice Developer. Our vision is an inclusive society where communities value and treat all people as equal citizens. (18.03.2026)
Acquired Brain Injury & Care Alliance with Sarah Prodoni and Jacqueline Moore. We had the pleasure of speaking with Sara Prodoni from Acquired Brain Injury and Jacqueline Moore about the incredible support services available for carers looking to rebuild their careers. (25.03.2026)
Funmilayo Akingbade, NCGI Impact & Influence Explained. We highlight the inspiring work of Funmilayo Akingbade and her role within NCGI, where she is dedicated to making a meaningful impact in her community. (31.03.2026)
Angela Donnelly, Fingal County Council. Angela Donnelly of Sinn Féin has been co-opted by the members of Fingal County Council to replace Cllr Aaron O’Rourke who resigned as a councillor due to time pressure. She represents the Ongar Local Electoral Area. (01.04.2026))
Roisin Lonergan, Artistic Director, The Five Lamps Arts Festival. The Five Lamps Arts Festival celebrates creativity, community, and connection in Dublin’s North East Inner City. Each year the festival brings people together through music, theatre, exhibitions, workshops, and performances that reflect the spirit and diversity of the neighbourhood. (07.04.2026)
Kate Gray, Secretary Fundraising, Move4Parkinson's We have a vision of a world in which People with Parkinson’s (PwP’s) are empowered to achieve their best possible quality of life. 8.04.2026.
Understanding Migraine with Naomi Thornton: Insights from Migraine Ireland. John Comiskey speaks with Naomi Thornton, Info Line and Migraine Support Officer at Migraine Ireland, about migraine — a complex neurological condition affecting over 800,000 people in Ireland.24/04/2026
Gerry McGrath, Kings River Community.John Comiskey speaks with Gerry McGrath on Disability Matters about his experience attending Kings River Community — a supportive day service that helps people build confidence, life skills, and meaningful connections.29/04/2026
Fiona Bolger, CEO of Spinal Injuries Ireland.According to the World Health Organisation a spinal cord injury (SCI) is one of the most devastating and life changing injuries that a person can sustain. 05/05/2026
Before we die campaign with Tony Murray.We sat down with Tony Murray from the Before We Die Campaign Ireland to discuss a critical issue facing so many families across Ireland.06/05/2026
Emer Mulvany, Cancer Trials Ireland - 21/05/26
Aishling Kennedy, MDI - 21/05/26
Donall Geogheghan, The Wheel - 21/05/26
Marion Lynch, Jack&Jill - 21/05/26
Naomi Fitzgibbons, Irish Motor Neurone Disease Foundation (IMNDF) - 21/05/26
Ciara Heffernan on Rehab Group's Mission. Changing Lives Across Ireland. In this insightful episode, John interviews Ciara Heffernan, Senior Communications Officer at Rehab Group Ireland, for an engaging conversation about inclusion, social impact, and the power of communication in driving positive change across Ireland. (04.06.2026)
Coreen Kelday, Brittle Bone Society. In this episode of Disability Matters, John Comiskey speaks with Coreen Kaldé, Support Development Officer at the Brittle Bone Society, about Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease. (05.06.2026)
Kate Gray, Living with Parkinson's in Ireland. In this episode of Disability Matters, we sit down with Kate Gray from Move4Parkinsons Ireland for an important conversation about Parkinson's disease, awareness, support services, and the realities of living with a neurological condition. (15.06.2026))
Ken Kilbride, CEO of ADHD Ireland. In this episode of Disability Matters, John Comiskey is joined by Ken Kilbride, CEO of ADHD Ireland, for an in-depth discussion about ADHD, its impact across the lifespan, and the supports available for children, adults and families. (02.07.2026)
Denise Dunne, Cystinosis Ireland. Cystinosis Ireland provides support and resources to families, medical professionals, researchers and others from the early stages of diagnosis through to adulthood. (17.06.2026)
Maureen Sweeney, Ataxia Foundation Ireland. Ataxia Foundation Ireland is partnering with Speak Unique to offer voice banking to everyone with ataxia in Ireland. (19.06.2026)
Shane Rothwell, wheelchair user. Marginalization of people with disabilities. Advocacy & Awareness-Raising. (20.06.2026)
Victoria Spillane, Crohns & Colitis Ireland. World IBD Day is held annually on May 19th. In Ireland, Crohn's & Colitis Ireland (CCI) leads the national campaigns to raise awareness for Crohn's disease and ulcerative colitis. Their initiatives include releasing educational guides, hosting patient conferences, and highlighting global issues like access to care. (25.06.2026)