Parkinson’s is the second most common neurodegenerative disease after Alzheimer’s, and Ireland’s aging population means cases will rise significantly in the coming decades.
In this episode of Disability Matters John Comiskey speaks with Shane O’Brien, CEO of Parkinson’s Ireland. You will learn what Parkinson’s disease is, the many ways it can affect people, the treatments and self-management strategies available, and how Parkinson’s Ireland is supporting individuals and families across the country.
What Parkinson’s Is — and Isn’t
“Parkinson’s disease is a neurological disorder, more specifically a movement disorder,” Shane says. “It’s actually the fastest-growing neurological condition in the world. In Ireland alone, there are an estimated 18,000 people living with Parkinson’s, and that number is expected to double by 2050.”
Far beyond the well-known tremor, Parkinson’s comes with more than 40 possible symptoms. These range from slowness of movement, sleep difficulties, and anxiety, to loss of taste and smell. “That’s why we launched our awareness campaign, Different for Everyone,” Shane explains. “Because the truth is exactly that — every person’s Parkinson’s journey looks different.”
A Growing Challenge
The statistics are sobering. Parkinson’s is the second most common neurodegenerative disease after Alzheimer’s, and Ireland’s aging population means cases will rise significantly in the coming decades. “This is going to put pressure on our health services,” Shane notes. “We need to plan now.”
While the condition affects men slightly more than women, the gender split is close to 50/50.
Treatment and Hope
At present, there is no cure. But there are treatments. “Parkinson’s is caused by a reduction of dopamine in the brain,” Shane explains. “Medications can help replace dopamine in different ways. They’re effective but they also have side effects. The hope is that research will lead to more targeted therapies — and eventually, a cure.”
Alongside medication, exercise plays a vital role. “We call them the twin pillars of Parkinson’s treatment: medication and exercise. Consultants often say ‘exercise is medicine,’ and it’s true. Classes like yoga, tai chi, and Parkinson’s-specific exercise groups make a real difference. The key is consistency and finding something you enjoy.”
Work, Driving, and Everyday Life
Many newly diagnosed people worry about how Parkinson’s will affect their daily independence. “You do need to declare the condition to the RSA when you’re diagnosed,” Shane explains, “and driving should always be discussed with your GP as things progress. In terms of work, it’s about reasonable accommodations. With the right supports, many people can continue working for as long as they wish.”
Advice for the Newly Diagnosed
If someone is newly diagnosed, Shane’s message is clear: don’t face it alone.
“Self-management is vital — taking medication on time, finding peer support, and engaging with services. At Parkinson’s Ireland, we provide a range of supports:
- A free Parkinson’s Nurse Specialist Helpline (1-800-359-359)
- Access to a dietitian, since nutrition plays a key role in managing symptoms
- Online and in-person exercise classes through local branches
- Resources for newly diagnosed people, including our Planning Your Journey guide
The website parkinsons.ie is also full of accessible, practical information.”
Nearly Four Decades of Support
Founded in 1987, Parkinson’s Ireland began as a collection of local support groups that came together to form a national umbrella organisation. “Nearly 40 years later, we’ve grown into a network of staff and volunteers delivering services nationwide,” Shane says. “We’ve secured additional government funding, expanded our nursing team, and opened new branches. But with the projected rise in cases, there’s still much more to do.”
One pressing challenge is the shortage of neurologists in Ireland. “That’s where Parkinson’s Nurse Specialists play such an important role,” Shane explains. “They provide ongoing support between consultant appointments. Everyone with Parkinson’s should have access to one — and we’re working to expand that access.”
How You Can Get Involved
People can support Parkinson’s Ireland in many ways:
- Membership – Join via the website parkinsons.ie
- Volunteering – Help at local branches or national events
- Donations & Fundraising – Every contribution, big or small, supports vital services
“We’re deeply grateful to our volunteers and fundraisers,” Shane says. “They’re the backbone of what we do.”
A Final Word
For those living with Parkinson’s — whether newly diagnosed or further along their journey — Shane’s advice is simple: reach out.
“Don’t wait. Even if you start small — attend one class, call our helpline, or connect with others living with Parkinson’s. You’ll find support, understanding, and practical help to manage the condition.”
🔗 Learn more: parkinsons.ie
📞 Freephone Nurse Helpline: 1-800-359-359
Disability Matters airs every Thursday at 4PM on Phoenix 92.5FM, with repeats on Monday at 3PM and Tuesday at 7AM & 3PM. Podcast available after each show on Mixcloud and on bcil.ie/radio.