“Don’t try to predict the future — take it one day at a time and focus on living well.”
On Disability Matters, John Comiskey speaks with Sorcha Barlow, MS Support and Education Nurse with MS Ireland, about living with multiple sclerosis (MS), the realities behind the condition and the importance of support, education and community.
Sorcha brings both clinical expertise and frontline experience to her role — supporting individuals directly while also helping to develop new services and raise awareness across Ireland.
What Is Multiple Sclerosis?
Multiple sclerosis (MS) is a complex neurological condition that affects the central nervous system — the brain and spinal cord.
Our bodies rely on nerve signals to carry messages between the brain and the rest of the body. These nerves are protected by a layer called myelin, similar to insulation around an electrical wire.
With MS, this protective layer becomes damaged — a process known as demyelination — disrupting communication between the brain and the body.
“It’s like damage to the insulation on a wire,” Sorcha explains. “The messages don’t travel the way they should — and that’s when symptoms appear.”
How Many People Are Affected?
In Ireland, it is estimated that around 10,000 people are living with MS — though the true number may be higher.
Interestingly, MS is more common in countries further from the equator, including Ireland, possibly linked to lower levels of vitamin D due to reduced sunlight exposure.
Understanding the Symptoms
MS affects each person differently, but symptoms can include:
▪️ Severe fatigue
▪️ Mobility and balance difficulties
▪️ Cognitive challenges such as memory or concentration issues
▪️ Muscle spasms
▪️ Vision problems
▪️ Changes in sensation
Fatigue is one of the most common and misunderstood symptoms.
“It’s not just being tired,” Sorcha explains. “People describe it as feeling like they’re wading through concrete.”
This level of exhaustion can significantly impact education, employment and daily life.
A Hidden Impact on Daily Living
MS can affect many aspects of life — often in ways that aren’t immediately visible.
Education and work can become more challenging due to fatigue and cognitive difficulties.
Travel and independence may require additional planning and support.
Relationships and intimacy can also be affected, though these topics are not always openly discussed.
“It’s something people want to talk about more,” Sorcha notes, particularly around intimacy and sexuality, which can be impacted by the condition.
The Emotional Impact of Diagnosis
Receiving a diagnosis of MS can be overwhelming.
“The hardest part is the uncertainty,” Sorcha says. “People don’t know what the future will look like.”
However, she emphasises that no two journeys with MS are the same — and support is available.
Connecting with an MS nurse, support services or peer groups can make a significant difference in helping people adjust and feel less alone.
The Role of MS Ireland
Founded in the 1960s, MS Ireland is the national organisation dedicated to supporting people living with MS in Ireland.
Despite the scale of the condition, individuals are not automatically referred to the organisation after diagnosis — meaning awareness is crucial.
“We have so many services that people don’t know about,” Sorcha explains.
Services and Support Available
MS Ireland offers a wide range of supports designed to help people live well with MS:
▪️ Physiotherapy programmes for balance, mobility and symptom management
▪️ Fatigue management courses delivered nationwide
▪️ Community workers in every county providing practical support and guidance
▪️ Peer support groups and social events
▪️ Information services and helpline
▪️ Respite care services
At the heart of these services is a strong focus on wellbeing and independence.
The MS Care Centre
Sorcha works part-time in the MS Care Centre — a 12-bed respite facility supporting people with MS and other neurological conditions.
The centre offers:
▪️ Nursing and personal care
▪️ Medication support
▪️ Social activities and outings
▪️ Wellness programmes, including art and music
▪️ Relaxation facilities such as a jacuzzi
“It’s a busy and supportive environment,” she says. “People come not just for care, but for connection.”
The Power of Peer Support
One of the most important aspects of living well with MS is connecting with others.
“Peer support is at the core of everything,” Sorcha explains. “It helps people realise they’re not alone — and that others are living full lives too.”
Through coffee mornings, events and support groups, individuals can share experiences, advice and encouragement.
Research and Hope for the Future
MS Ireland is actively involved in supporting research into MS, including:
▪️ Symptom management
▪️ Genetic research
▪️ Improved treatments
While a cure remains the ultimate goal, ongoing research continues to improve quality of life and long-term outcomes for people living with MS.
Fundraising and Community Support
As a charity, MS Ireland relies heavily on fundraising to maintain and expand its services.
Key initiatives include:
▪️ MS Readathon
▪️ The May 50K challenge
▪️ Mini Marathon participation
These events not only raise vital funds but also build awareness and community solidarity.
A Message for Those Newly Diagnosed
For anyone newly diagnosed with MS, Sorcha offers simple but powerful advice:
“Take it one day at a time. Don’t try to predict the future. Focus on living well and build a strong support network.”
How to Get Support
🌐 Website: www.ms-society.ie
📞 Information Line: 0818 233 233
Read more: Living with Multiple Sclerosis: Insights from MS Nurse Sorcha Barlow
This interview aired on Disability Matters on 92.5 Phoenix FM, a programme produced by Blanchardstown Centre for Independent Living (BCIL).
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