On this week’s Disability Matters, John Comiskey speaks with Kate Gray, Secretary of Fundraising with Move4Parkinson’s —a community-driven organisation transforming how people live with Parkinson’s.
Parkinson’s is often misunderstood. While many associate it with tremors, Kate explains that the reality is far more complex.
“There are around 40 different symptoms,” she says. “That’s why it’s often called a ‘designer disease’—no two people experience it the same way.”
In Ireland, an estimated 15,000–20,000 people are living with Parkinson’s. For Kate, the condition became deeply personal when her father was diagnosed over a decade ago.
“It came out of the blue,” she recalls. “For a long time, it was the elephant in the room.”
Like many families, they initially struggled to talk about the diagnosis. But everything changed when Kate discovered Move For Parkinson’s through a documentary—and decided to attend an open evening.
“What I felt walking into that room was something different,” she says. “There was connection, support, and a real sense of belonging.”
A Community That Makes a Difference
Founded around 15 years ago by Mags Molloy, who was diagnosed with Parkinson’s in her 40s, Move For Parkinson’s was built on one key idea: that movement, exercise, and community can significantly improve quality of life.
What started as a small choir has grown into a nationwide network of evidence-based programmes, including:
- Dance and movement classes
- Choir and music therapy
- Support groups for individuals and families
- Education and awareness initiatives
Kate joined the board 11 years ago, motivated by a desire to give back.
“It’s been a lifeline for our family,” she says. “And I wanted to help others find that same support.”
The Five Elements of Living Well
At the heart of the organisation is a holistic approach to managing Parkinson’s—focusing on five key elements: medication, nutrition, exercise, emotional wellbeing, and community.
Exercise, in particular, plays a crucial role.
“Movement is so important,” Kate explains. “Even something as simple as walking can have a huge impact—not just physically, but mentally.”
Music and singing also have powerful benefits. For many people with Parkinson’s, voice and communication can be affected—but choir and music therapy help rebuild both confidence and connection.
“There’s something incredibly powerful about singing together,” she says. “You leave feeling uplifted.”
Breaking Isolation Through Connection
One of the biggest challenges people face after diagnosis is isolation—especially for those living alone.
Move For Parkinson’s works closely with healthcare professionals across Ireland, providing information and resources to ensure people know support is available.
“Sometimes the hardest step is picking up the phone,” Kate says. “But there’s always someone there who understands.”
Support groups—both for individuals and family members—offer safe spaces to share experiences, challenges, and encouragement.
“Everyone’s journey is different,” she adds. “But knowing you’re not alone makes a huge difference.”
Changing the Narrative
While Parkinson’s is a progressive condition, Kate is clear that the story doesn’t have to be one of decline.
“There’s still so much life to live,” she says. “And with the right support, people can continue to thrive.”
Events like their annual conference for World Parkinson’s Day bring the community together—combining expert insights with interactive movement and music sessions.
For Kate, the impact of the organisation is simple but profound:
“It gave us hope.”
📍 Learn more about Move for Parkinson’s at www.move4parkinsons.com or follow on Facebook for updates on events and classes & Finding Hope Through Music
This interview aired on Disability Matters on 92.5 Phoenix FM, a programme produced by Blanchardstown Centre for Independent Living (BCIL).
Tune in to Disability Matters Thursdays at 4PM | Repeats: Mon 3AM, Tue 3AM & 7AM | Also available on Mixcloud and on bcil.ie/radio.
Compiled by Valentyna Hordiichuk