“They can do anything anyone else can do — it might just take them a little bit longer.”
In this insightful episode of Disability Matters, hosts John Comiskey and Patrick O’Donnell welcome Dearbhail Mullan, Treasurer of Williams Syndrome Ireland, to discuss the realities, resilience, and joys of living with Williams Syndrome — a rare neurodevelopmental condition caused by a microdeletion of chromosome 7.
Dearbhail shares her personal journey as the mother of Ciarán, her 16-year-old son diagnosed with Williams Syndrome. She explains how the condition often brings a unique blend of challenges — including learning difficulties and heightened sociability — alongside rich emotional intelligence and musical ability.
“It’s not life-limiting, but it does require support,” she explains.
Early intervention, inclusive education, and peer-led support are crucial for helping individuals live full, happy, and connected lives. But as Dearbhail highlights, the diagnosis journey is often delayed due to the condition’s complexity. “It was a relief to finally get a diagnosis,” she says, recounting how access to resources and support changed everything for her family.
Williams Syndrome Ireland, established over 30 years ago by two determined mothers, remains a peer-led, volunteer-driven charity dedicated to providing community, information, and advocacy. Through summer camps, social activities, educational guidance, and awareness campaigns like the “7 Walks for Williams,” the organisation fosters a sense of belonging for families nationwide.
Inclusivity is a central theme of the conversation. “Inclusion is a massive thing,” says Dearbhail, encouraging clubs and community groups to adapt their activities. “Your life and your community will be enriched for it.”
Williams Syndrome Ireland continues to expand its support network, raise awareness, and champion the power of peer connection. From WhatsApp groups and school advocacy to life skills support and national events — the charity creates space for people with Williams Syndrome to thrive.
🟣 Learn more or get involved: www.williamssyndrome.ie
📧 Contact: info@williamssyndrome.ie