Arthritis is often misunderstood as simply “aches and pains” that affect older people. In reality, it is one of Ireland’s biggest causes of disability, affecting more than one million people and impacting every aspect of daily life.
In this informative edition of Disability Matters, John Comiskey speaks with Tara Regan, Communications and Advocacy Manager at Arthritis Ireland, about the many forms of arthritis, the importance of early diagnosis, self-management, and the wide range of supports available for people living with arthritis and related conditions.
More Than 100 Different Conditions
Tara begins by explaining that arthritis is not a single disease.
“Arthritis is actually an umbrella term for over 100 different types of arthritis.”
She explains that these conditions generally fall into two broad categories:
- Inflammatory arthritis, including rheumatoid arthritis, psoriatic arthritis and axial spondyloarthritis.
- Osteoarthritis, the most common form, often linked with ageing, previous injuries and lifestyle factors.
While treatments for inflammatory arthritis have advanced dramatically over the past two decades, osteoarthritis is largely managed through lifestyle changes, exercise and pain management.
Exercise Doesn’t Mean Running a Marathon
One of the biggest myths about arthritis is that people should avoid movement.
In fact, Tara explains that staying active is one of the most effective ways to manage symptoms.
“Any movement that you can do is beneficial.”
Exercise doesn’t have to be intense.
Walking, swimming, chair exercises, aqua aerobics and Tai Chi can all improve mobility, reduce pain and increase confidence.
“You don’t have to be pounding the pavements or spending hours in the gym.”
Arthritis Is Often an Invisible Disability
One of the most powerful parts of the conversation focuses on invisible disability.
Many people living with arthritis appear perfectly well, while coping with constant pain, overwhelming fatigue and unpredictable flare-ups.
“People may struggle to lift their children, make a cup of tea, get out of bed or go to work—and nobody can see that.”
Tara explains that many people feel isolated because others simply cannot understand what they are experiencing.
“It’s sometimes quite invisible. People don’t realise someone may be living with chronic pain every single day.”
More Than Joint Pain
John was surprised to learn that arthritis can affect much more than the joints.
Certain rheumatic conditions can impact:
- the skin
- the eyes
- the lungs
- the heart
- connective tissues throughout the body.
Conditions such as lupus, Sjogren’s disease and Raynaud’s share many symptoms with arthritis and can also have a significant impact on quality of life.
One Million People in Ireland
Although official figures are unavailable, Arthritis Ireland estimates that:
- over one million people
- around one in five people in Ireland
live with arthritis or a related condition.
It is also the leading cause of disability in Ireland.
“That’s a really significant number, and it’s something many people don’t realise.”
Learning to Live Well
Receiving a diagnosis can be overwhelming.
Tara acknowledges that many people experience a period of grief after diagnosis.
But she emphasises that diagnosis is also the beginning of learning how to manage the condition successfully.
“It’s about learning to live with arthritis—but learning to live well with arthritis.”
Medication is only one part of treatment.
Other key elements include:
- healthy eating
- regular physical activity
- pacing daily activities
- managing fatigue
- understanding flare-ups
- building confidence.
The STEPS Programme
One of the highlights of the interview is Arthritis Ireland’s STEPS Programme — Steps Towards Empowered People.
Rather than waiting for problems to develop, the programme provides early, personalised support for people newly diagnosed with arthritis.
Participants receive:
- individual phone support from trained volunteers
- personalised information packs
- practical self-management advice
- follow-up calls
- guidance towards appropriate services.
“It’s about empowering people to understand their diagnosis and take control of their own health.”
Peer Support Makes a Difference
Tara also highlights Arthritis Ireland’s long-running Living Well with Arthritis programme, which has now been supporting people for nearly twenty years.
The six-week programme allows participants to connect with others who truly understand what living with arthritis feels like.
Many participants remain friends long after the programme ends.
Support From People Who Understand
Arthritis Ireland also operates a national helpline staffed by trained volunteers who either live with arthritis themselves or care for someone who does.
“No issue is too big or too small.”
The organisation also provides:
- online webinars
- podcasts
- educational videos
- expert interviews
- Facebook support groups
- newsletters
- practical resources for people newly diagnosed.
You Are Not Alone
Throughout the interview, Tara repeatedly reminds listeners that support is available.
No one should feel they have to manage arthritis alone.
Whether someone has just received a diagnosis or has lived with arthritis for many years, Arthritis Ireland offers information, practical guidance and a supportive community.
As John concludes, taking control of your condition can make an enormous difference.
This conversation is an encouraging reminder that while arthritis may be a lifelong condition, with the right support, education and self-management, people can continue to live full, active and meaningful lives.
For more information, visit www.arthritisireland.ie.
This interview aired on Disability Matters on 92.5 Phoenix FM, a programme produced by Blanchardstown Centre for Independent Living (BCIL).
Tune in to Disability Matters Thursdays at 4PM | Repeats: Mon 3AM, Tue 3AM & 7AM | Also available on Mixcloud and on bcil.ie/radio.
Compiled by Valentyna Hordiichuk